Team José initially served as a way for José and Jen to keep friends and family updated while also advocating for others living with Amyotrophic lateral sclerosis (ALS). With his passing, we're transitioning to becoming a 501(c)(3) nonprofit that supports people living with ALS to tell their stories, build community, and live with comfort and dignity.
🥳 and we're live!
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As I shared on Monday, today would have been José's 62nd birthday. In his memory, and in fulfillment of his final wishes, today we kick-off an online auction of most of the art he created and collected in his lifetime. The goals of the online auction are to:
And at the encouragement of several of you, to also provide a bit of financial support to me in my own recovery. Most importantly, my hope is that as his art makes its way to friends and family far and wide, that it brings a bit of joy and serves as a cherished memento and reminder of José to each recipient. If you happen to log on to the site today, please be aware that we are STILL ADDING ITEMS to the auction and that will likely continue through early next week. Link to the auction site: 32auctions.com/joselegacy If you have any questions about the auction, how the proceeds will be used, or any of the items listed please don't hesitate to reach out. And of course, your help spreading the word to others who knew and loved José is greatly appreciated. in gratitude, |
Team José | #TeamJosé
Team José initially served as a way for José and Jen to keep friends and family updated while also advocating for others living with Amyotrophic lateral sclerosis (ALS). With his passing, we're transitioning to becoming a 501(c)(3) nonprofit that supports people living with ALS to tell their stories, build community, and live with comfort and dignity.
If you knew José later in his adult life, you likely knew that he was a great lover of art of all kinds–most notably various performing arts and blown glass–and he was also incredibly proud of the many pieces he had personally collected. As I've just shared on the blog, this month I will be organizing an online auction to fulfill the last remaining request from José's final wishes: for much of that art to be used to raise funds for an internship program in his honor at Hawai‘i Public Radio....
You may remember (and have contributed to) the crowdfunding campaign that helped us purchase and install a ceiling lift during the summer of 2023 when José was barely able to stand and transfers were becoming incredibly taxing and dangerous–for both of us. I'm happy to share that it was recently removed and gifted to another family here on Oahu. This update was also just posted to the blog with a few photos. Also sharing a reminder that the online auction that was initially planned for May...
To all of the amazing humans of #TeamJosé, While I wasn't part of the gathering, I've received numerous messages from family and friends recounting how much José would have enjoyed having so many people he loved all in one room together. Thank you for sharing your stories and remembrances, for making time, and for your presence. Big thanks to José's children and siblings for honoring his final wishes and for all the planning and legwork. We are also incredibly grateful to Central Florida...