Team José initially served as a way for José and Jen to keep friends and family updated while also advocating for others living with Amyotrophic lateral sclerosis (ALS). With his passing, we're transitioning to becoming a 501(c)(3) nonprofit that supports people living with ALS to tell their stories, build community, and live with comfort and dignity.
out with the old
Thanks for subscribing to our updates! It feels good to be connected and know that you are following along and supporting us in José’s journey and fight. |
It's been several weeks since our last email update! José drafted this post at the beginning of the week which has been a bit of a doozy (including him having a pretty rough night last night--more on that soon). He packed in a lot of updates on a whole bunch of pending health procedures and devices that have all come together since November. We've already got another post in the queue with more news... stay tuned! xoxo,
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Team José | #TeamJosé
Team José initially served as a way for José and Jen to keep friends and family updated while also advocating for others living with Amyotrophic lateral sclerosis (ALS). With his passing, we're transitioning to becoming a 501(c)(3) nonprofit that supports people living with ALS to tell their stories, build community, and live with comfort and dignity.
The day is finally here. Friends, family, and colleagues will gather at Central Florida Public Media (formerly WMFE) from 3:30 – 5:30 p.m. for a second celebration of life. If you're in a timezone outside of Florida, that's about two hours from now. As some of you know, I made the difficult decision not to be there today. For anyone else who cannot be there in person, for any reason, you're invited to take a few minutes to remember José today: sit with your favorite memories, light a candle,...
As you might have guessed from the six-week lag since the last update on Team José, I'm still struggling a bit to juggle everything. That said, I do have an exciting update to share! Last week we received the official notification from the IRS that our application as a 501(c)(3) nonprofit organization has been approved. We'll share more about what that means soon, but we wanted to celebrate this milestone with all of you who have followed along as part of Team José. The second update is that...
Dear Reader, It's been a couple of months since our last update and there are a number of things brewing that we want to share with you. This will be a quick note with more details to come. REMINDER: a celebration of Life in Orlando, FL, will be hosted at Central Florida Public Media (fka WMFE) on Saturday, June 28, 2025 from 3:30 - 5:30 p.m. Many of you have already RSVP'd. Please feel free to share this link with friends, family, and colleagues who may have missed our previous...